This website uses cookies to improve user experience. By clicking “Accept All”, you agree to the storing of cookies on your device to enhance site navigation, measure site performance and show you personalized advertising. You can manage individual cookies preferences or withdraw your consent at any moment by clicking on the link .
Community and Resources
To get Rhea
here….
To get Rhea
here….
…she may need an early
and accurate diagnosis here
Let’s Talk SPIGFD
Getting a correct diagnosis of SPIGFD is important. Parents, guardians, and caregivers can use this downloadable tool to help guide conversations with healthcare providers. It starts with a checklist and includes a discussion guide, which can help ensure you’re asking the right questions.
Patient Advocacy
You might find this patient advocacy website to be a good resource.
The MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth.